Increasing Health Equity and Equality for Persons at Risk for Alzheimer Disease and Related Dementias: A community and patient engaged research (CPER) framework

Joyce (Joy) Balls-Berry, PhD, MPE
Associate Professor of Neurology
Washington University School of Medicine

Abstract: As our population ages, the global crisis related to Alzheimer disease (AD) and related dementias (ADRD) increases. There is an acute need to develop research strategies that support the needs of our aging community. Addressing health disparities in ADRD begins with acknowledging the impact of social determinants of health, structural vulnerability, and systematic discrimination. Ethnoracial factors, classism, systemic and systematic racism, ageism, historical mistrust of scientists, and suspicion of the healthcare system are all factors linked to reduced participation in ADRD research. Dr. Balls-Berry will discuss a novel approach to recruiting, enrolling, and retaining members of under-resourced communities in an ADRD research registry named COEQUAL (Creating Opportunities to Increase Health Equity and Equality for Persons at Risk for Alzheimer Disease and Related Dementias). She will detail how a community and patient engaged research framework (CPER) was employed to develop and test the feasibility of a high-yield recruitment process to create this research registry.

This Health Informatics Grand Rounds is co-sponsored by SHRS Bioethics and Health Humanities Series and the Research, Ethics and Society Initiative of the Office of Research

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