Human Subjects Research

India-U.S. Research Training Program in Genetics
Lisa Parker provides research ethics training during a series of workshops on computational genetics to program participants in Kolkata, India, with funding from the Fogarty International Center of the National Institutes of Health, as part of a collaboration between the University of Pittsburgh and the Indian Statistical Institute. Topics include the research principles of the Indian Council of Medical Research, informed consent, privacy protection, community consultation, and publication practices.

Training Program for Psychiatric Genetics in India
With funding from the Fogarty International Center of the National Institutes of Health, Lisa Parker provides bioethics and research ethics training to visiting scholars from India, and as a primary mentor for a post-doctoral fellow in bioethics.  Alan Meisel also serves as a consultant to trainees, focusing on human subjects protection in the context of both family pedigree studies and psychiatric research.

Managing Incidental Findings and Research Results in Genomic Biobanks and Archives and Managing Incidental Findings in Human Subjects Research
Lisa Parker participates in these two national Working Groups sponsored by the National Human Genome Research Institute (NHGRI) that are charged with developing guidelines for the management of incidental findings and individual research results, particularly those arising from genetic and imaging research and from the use of biobanks. Her participation has resulted in individual publications, as well as her collaboration on consortium consensus policy manuscripts.