Bioethics and Racism

Racism has been a prominent topic in the bioethics literature as of 2020, with its prevalence rising in conjunction with the Black Lives Matter movement. Pictured left are data demonstrating a surge in results for (racism x bioethics) in PubMed.

 

 

 

Alpert A. Philosophy’s Systemic Racism, published by Aeon/Psyche, online newsletter, September 24, 2020.

Biggers A. Racism in Healthcare: What You Need to KnowMedical News Today, Sep 16, 2020.

Borrell LN, Elhawary JR, Fuentes-Afflick E, et al. Race and Genetic Ancestry in Medicine - A Time for Reckoning with RacismNEJM 2021, 384(5): 474-480. doi: 10.1056/NEJMms2029562. PMID: 33406325.

Bridges KM, Keel T, Obasogie OK. Introduction: Critical Race Theory and the Health Sciences. The American Journal of Law & Medicine 2017, 43(2-3): 179-182. doi.org/10.1080/15265161.2020.1863517.

Brünig L, Sabine S. Making Structural Discrimination Visible: A Call for Intersectional Bioethics. The American Journal of Bioethics 2022, 22(3): 42-44. doi: 10.1080/15265161.2022.2027557. 

Byrd WM, Clayton LA. Race, Medicine, and Health Care in the United States: A Historical Survey. Journal of the National Medical Association 2001, 93(3 Suppl): 11S-34S. PMID: 12653395 PMCID: PMC2593958.

Char DS, Shah NH, Magnus D. Implementing Machine Learning in Health Care - Addressing Ethical ChallengesNEJM 2018, 378(11): 981-983. doi: 10.1056/NEJMp1714229.

Chattopadhyay S, Myser C, De Vries R. Bioethics and Its Gatekeepers: Does Institutional Racism Exist in Leading Bioethics Journals? Bioethics Inquiry 2013, 10: 7-9. doi: 10.1007/s11673-012-9424-5.

Chowkwanyun M, Reed AL. Racial Health Disparities and Covid-19—Caution and ContextNEJM 2020, 383(3): 201-203. doi: 10.1056/NEJMp2012910.

Clark US, Hurd YL. Addressing Racism and Disparities in the Biomedical SciencesNature Human Behaviour 2020, 4: 774-777. doi: 10.1038/s41562-020-0917-7.

Conley D. Toward a Two-Dimensional Conception of Socioeconomic Status for Health PolicyMilbank Quarterly Opinion, December 17, 2020. This is a commentary explaining how not only income and education, but also inter-generational wealth, and in turn racism, affect health disparities.

Danis M, Wilson Y, White A. Bioethicists Can and Should Contribute to Addressing RacismThe American Journal of Bioethics 2016, 16(4): 3-12. doi: 10.1080/15265161.2016.1145283.

Elias A, Paradies Y. The Costs of Institutional Racism and its Ethical Implications for HealthcareJournal of Bioethical Inquiry 2021, 2:1-14. doi: 10.1007/s11673-020-10073-0. Online ahead of print.

Fabi R, Goldberg DS. Bioethics, (Funding) Priorities, and the Perpetuation of InjusticeThe American Journal of Bioethics 2021, 22: 1-14. doi: 10.1080/15265161.2020.1867934. PMID: 33480827.

Farley MA. Institutional Ethics Committees as Social Justice Advocates. Health Progress 1984, 65(9): 32-5, 56. PMID: 10268330.

Fulford B, Radden J. An Internal RacismBioethics 2002, 16(5): iii-viii. doi: 10.1111/1467-8519.00297. PMID: 12472086.

Fuller LL. Policy, Advocacy, and Activism: On Bioethicists' Role in Combating RacismThe American Journal of Bioethics 2016, 16(4): 29-31. doi: 10.1080/15265161.2016.1145287. PMID: 26982919.

Galarneau C. Structural Racism, White Fragility, and Ventilator Rationing PoliciesThe Hastings Center, April 20, 2020.

Gee GC, Ford CL. Structural Racism and Health Inequities: Old Issues, New DirectionsDu Bois Review 2011, 8(1): 115-132. doi: 10.1017/S1742058X11000130.

Gross MS, Norton A. The Birth of Injustice: COVID-19 Hospital Infection Control Policy on Latinx Birth ExperienceThe American Journal of Bioethics 2021, 21(3): 102-104. doi: 10.1080/15265161.2020.1870769. PMID: 33616488.

Grzanka PR, Brian J, Shim JK.  My Bioethics Will Be Intersectional or It Will Be [Bleep]The American Journal of Bioethics 2016, 16(4): 27-29. doi.org/10.1080/15265161.2016.1145289.

Hagopian A, West KM, Ornelas IJ, et al. Adopting an Anti-Racism Public Health Curriculum Competency: The University of Washington Experience. Public Health Reports 2018, 133(4): 507-513. doi: 10.1177/0033354918774791. Epub 2018 May 30. PMID: 29847749.

Haupt L. Patient Welfare and TrustThe Hastings Center Report 2020, 50(1):2. doi: 10.1002/hast.1073. PMID: 32068282.

Ho A.  Racism and Bioethics: Are We Part of the Problem?  The American Journal of Bioethics 2016, 16(4): 23-25. doi.org/10.1080/15265161.2016.1145293.

Hoberman J.  Why Bioethics Has a Race ProblemThe Hastings Center Report 2016, 46(2): 12-18. doi.org/10.1002/hast.542.

Kaebnick GE, Haupt L. Learning from a PandemicThe Hastings Center Report 2020, 50(3):3. doi: 10.1002/hast.1115. PMID: 32596913.

Khazanchi R, Evans CT, Marcelin JR. Racism, Not Race, Drives Inequity Across the COVID-19 ContinuumJAMA Network Open 2020, 3(9): e2019933. doi:10.1001/jamanetworkopen.2020.19933.

Lewsley J. What are the Effects of Racism on Health and Mental Health? Medical News Today, July 28, 2020.

Non AL, Gravlee CC. Biology and Culture Beyond the Genome: Race, Racism, and HealthAmerican Anthropologist 2015, 117(4): 736-749. doi.org/10.1111/aman.12365.

O’Brien R, Neman T, Seltzer N, et al. Structural Racism, Economic Opportunity and Racial Health Disparities: Evidence from U.S. CountiesSSM Population Health 2020, 11:1-6. doi.org/10.1016/j.ssmph.2020.100564.

Ogedegbe G. Responsibility of Medical Journals in Addressing Racism in Health CareJAMA Network Open 2020, 3(8): e2016531. doi:10.1001/jamanetworkopen.2020.16531.

Olszewski AE, Scott M, Patneaude A, et al. Race and Power at the Bedside: Counter Storytelling in Clinical Ethics ConsultationThe American Journal of Bioethics 2021, 21(2): 77-79. doi: 10.1080/15265161.2020.1861369. PMID: 33534694.

Oni-Orisan A, Mavura Y, Banda Y, Thornton TA, Sebro R. Embracing Genetic Diversity to Improve Black HealthNEJM 2021, 384(12):1163-1167. doi: 10.1056/NEJMms2031080. PMID: 33567186.

Owens K, Walker A. Those Designing Healthcare Algorithms Must Become Actively Anti-RacistNature Medicine 2020, 26(9): 1327-1328. doi: 10.1038/s41591-020-1020-3. PMID: 32908272.

Parker LS, Satkoske VB. Ethical Dimensions of Disparities in Depression Research and Treatment in the Pharmacogenomic EraJournal of Law, Medicine & Ethics 2012, 40(4): 886-903. doi: 10.1111/j.1748-720X.2012.00718.x. PMID: 23289692.

Parsi K. The Unbearable Whiteness of Bioethics: Exhorting Bioethicists to Address RacismThe American Journal of Bioethics 2016, 16(4):1-2. doi: 10.1080/15265161.2016.1159076. PMID: 26982910.

Parsi K, Dudzinski DM. The Need for Praxis in Combating the Race Idea in Bioethics: Theory, Reflection, and Action. The American Journal of Bioethics 202222(3): 4-5. doi: 10.1080/15265161.2022.2035158

Randall VR. Slavery, Segregation and Racism: Trusting the Health Care System Ain't Always Easy! An African American Perspective on BioethicsSt Louis University Public Law Review 1996, 15(2): 191-235. PMID: 11656870.

Reverby SM. Compensation and Reparations for Victims and Bystanders of the U.S. Public Health Service Research Studies in Tuskegee and Guatemala: Who Do We Owe What? Bioethics 2020, 34(9): 893-898. doi: 10.1111/bioe.12784. Epub 2020 Jun 30. PMID: 32608027.

Russell CA. Questions of Race in Bioethics: Deceit, Disregard, Disparity, and the Work of DecenteringPhilosophy Compass 2016, 11(1): 43-55. doi.org/10.1111/phc3.12302.

Sabatello M, Jackson Scroggins M, Goto G, et al. Structural Racism in the COVID-19 Pandemic: Moving ForwardThe American Journal of Bioethics 2021, 21(3): 56-74. doi: 10.1080/15265161.2020.1851808. Epub 2020 Dec 19. PMID: 33345745.

Sakran JV, Hilton EJ, Sathya C. Racism in Health Care Isn't Always ObviousScientific American, July 9, 2020.

Sullivan LS. Trust, Risk, and Race in American MedicineThe Hastings Center Report 2020, 50(1): 18-26. doi: 10.1002/hast.1080. PMID: 32068281.

Stanley J, Harris R, Cormack D, et al. The Impact of Racism on the Future Health of Adults: Protocol for a Prospective Cohort StudyBMC Public Health 2019, 346:1-10. doi.org/10.1186/s12889-019-6664-x.

Stone J. Racism and Bioethics: Experiences and ReflectionsThe American Journal of Bioethics 2016, 16(4): 13-35. doi.org/10.1080/15265161.2016.1145304.

Tello M. Racism and Discrimination in Health Care: Providers and PatientsHarvard Health Blog posted January 16, 2017, updated July 9, 2020.

Treadwell HM. The Pandemic, Racism, and Health Disparities Among African American MenAmerican Journal of Men’s Health August 7, 2020. doi.org/10.1177%2F1557988320949379.

Truong M, Sharif MZ. We're in This Together: A Reflection on How Bioethics and Public Health Can Collectively Advance Scientific Efforts Towards Addressing RacismJournal of Bioethical Inquiry, Jan 7, 2021. doi: 10.1007/s11673-020-10069-w. Online ahead of print. PMID: 33415592.

Vyas DA, Eisenstein LG, Jones DS. Hidden in Plain Sight - Reconsidering the Use of Race Correction in Clinical AlgorithmsNEJM 2020, 383(9): 874-882. doi: 10.1056/NEJMms2004740. PMID: 32853499.

Wilson YY. Bioethics, Race, and ContemptJournal of Bioethical Inquiry 2021, 7:1-10. online ahead of print. doi:10.1007/s11673-020-10070-3. PMID: 33415595.

Yearby R. Structural Racism and Health Disparities: Reconfiguring the Social Determinants of Health Framework to Include the Root CauseThe Journal of Law, Medicine & Ethics 2020, 48(3): 518-526. doi:10.1177/1073110520958876.

Zusevics KL. Public Health Genomics: A New Space for a Dialogue on Racism through Community Based Participatory ResearchPublic Health 2013, 127(11): 981-3. doi: 10.1016/j.puhe.2013.09.011. PMID: 24183926.