Bradley Malin, PhD
Accenture Professor of Biomedical Informatics, Biostatistics, and Computer Science, Vanderbilt University
Effy Vayena, PhD
Professor of Bioethics, Swiss Institute of Technology
Lucila Ohno-Machado, MD, PhD
Distinguished Professor of Medicine and Chair of the Department of Biomedical Informatics, UC San Diego Health
Abstract: To maximize benefits for patients, broad access to comprehensive genomic datasets is necessary. However, data sharing is in tension with privacy obligations to individuals and groups and threatens autonomy and control over data use. Data sharing policies, governance strategies, and technical solutions have been proposed and implemented to resolve this tension. However, full resolution of this issue has not been achieved. What do ELSI scholars, data scientists, policy makers, health researchers, and other stakeholders need to do to move forward?
View online here.
ELSI Hub Friday Forum sponsored by NHGRI
Location and Address
Online